August 2, 2017

Positivity: Charlie Gard was baptized, held St. Jude medal before death

Filed under: Life-Based News,Positivity — Tom @ 5:55 am

Charlie’s in heaven, which is more than one can say for the people who stalled long enough to make sure his condition couldn’t be cured.

From London:

Jul 31, 2017 / 10:31 am

Charlie Gard, an 11 month-old British infant who made headlines around the world over a fierce legal battle on parental rights, had been baptized by April.

Around that time, a picture of his tiny fist made the rounds on the internet of him clutching a St. Jude medal.

The boy’s parents, Chris Gard and Connie Yates, on Friday issued a statement announcing his death, saying: “Our beautiful little boy has gone, we are so proud of you Charlie.”

Family spokesperson Alison Smith-Squire announced on Sunday that he will be buried with his toy monkeys, pictured with him in one of the viral photos of the boy.

“We should be planning Charlie’s first birthday but instead we’re planning his funeral,” his mother said, according to the Sun.

According to the Sun, his parents spent the weekend with family and on Monday were planning to register his death. They had wanted to keep a low profile from the media after the boy’s passing.

Charlie had been at the center of a legal battle between his parents and the Great Ormund Street Hospital (GOSH), an internationally known children’s hospital where he was being cared for. The case raised questions about medical ethics, end-of-life procedure, and parental rights.

Charlie was born on Aug. 4 last year, and in September was discovered to have a rare genetic condition which resulted in muscular deterioration. He was believed to be one of 16 sufferers of the disease in the world.

He was admitted to GOSH in October, and in a series of court cases stretching from March to June, judges repeatedly ruled in favor of doctors who wished to have the boy’s life support removed, all the way to the European Court of Human Rights’ rejection to hear the case. Yates and Gard had hoped to take Charlie to the U.S. for experimental treatment.

In early July, both Pope Francis and U.S. president Donald Trump intervened in support of the family on twitter. Trump said that the United States would cooperate with the boy’s parents in helping Charlie receive the experimental care.

On July 10, unpublished research on Charlie’s condition seemed to indicate the therapy being developed in the States could improve his condition. However, as weeks passed, his condition deteriorated beyond chance of improvement …

Go here for the rest of the story.

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