June 2, 2019

Sunday (Moderated) Open Thread (060219)

Filed under: Lucid Links — Tom @ 6:00 am

This open thread is meant for commenters to post on items which they believe need to be known. Rules are here.

Positivity: How this mom of disabled children is helping others to ‘accept the gift’

Filed under: Positivity — Tom @ 5:55 am

From Berlin, NJ:

May 25, 2019 / 04:00 am

Kelly Mantoan doesn’t have a lot of free time. Between mothering 5 children, homeschooling some of them, getting her two youngest sons on the school bus on time, and juggling a writing career and a successful blog, she has a full schedule.

Her days even look a little different from those of the typical mother to a large family, because the Mantoan family’s two youngest children, Fulton, 10, and Teddy, 8, were both born with a rare degenerative genetic disorder called Spinal Muscular Atrophy, or SMA.

Both boys use motorized wheelchairs full time for mobility, and require round-the-clock care to ensure their health needs are met. Kelly and her husband,Tony know something about the strain that can accompany such comprehensive care.

That’s where the idea of a day-long conference designed especially for caregiving, special needs parents called “Accepting the Gift” was born.

“There’s really nothing else out there like it for Catholics – there are Protestant ministries to support parents of special needs children, but we looked and couldn’t find anything that ministered to Catholic parents, whose needs can be really unique,” Mantoan explained.

“From a theological standpoint, the Catholic faith is so instrumental in how I deal with my struggles as a special needs parents, we have such a rich theology of suffering.” Mantoan said, explaining that her Catholic faith has uniquely equipped her to accept her sons’ diagnoses.

“As a Catholic, I’ve been able to see that there is nothing wrong with my child, and God can bring joy in this, and this is who he is.’
(more…)