July 18, 2019

Thursday (Moderated) Open Thread (071819)

Filed under: Lucid Links — Tom @ 6:00 am

This open thread is meant for commenters to post on items which they believe need to be known. Rules are here.

Positivity: Doctors Said Boy With Rare Disorder Wouldn’t Survive. Grayson Just Turned 6

Filed under: Life-Based News,Positivity — Tom @ 5:55 am

From Birmingham, Alabama, via Life News:

JUL 12 2019, 12:58PM

Just weeks after Grayson Smith was born, he was sent home on hospice, expected to die.

The Alabama boy was born with a long list of abnormalities, and doctors told his parents not to expect their son to live long, Fox News reports. First, they thought he might live a few weeks and, then later, no more than a few years.

That was in February 2013.

Today, Grayson is 6 years old, and his parents, Jenny and Kendyl Smith, believe his life is a “miracle.”

“We have always been hopeful of finding another child like Grayson but we’ve never been able to find anyone like him,” his mother said, noting that they still do not fully know what Grayson’s condition is. “He is the only person ever known to have all of these birth defects. There is no one else to compare him to.”

She said her pregnancy with Grayson, the youngest of four children, was normal. Only after he was born did they realize that something was terribly wrong.

“As soon our baby made his grand entrance, we waited for the sound of his first cry. And waited. Nothing. My heart sank,” she wrote on the family’s Facebook page. “The first look a this face he was my precious gift from God. However, I knew something was terribly wrong. his face was severely swollen.”

“Of course, I was still in love with him but we were very scared,” Smith continued. “His eyes were swollen, he was very small and he had a huge bulge on his head. We have no idea of the cause or why he was born like this. Doctors have done genetic testing, DNA tests but they all came back fine.”

Quickly after he was born, he was transferred to another hospital in Atlanta, Georgia. His mother said they joined him there several hours after she gave birth; she insisted, against doctors’ recommendations, that she be discharged so she could be with her son.

In Atlanta, doctors gave them a long lost of Grayson’s anomalies and predicted that his chance of survival was zero, Smith said.

Two weeks later, Grayson was discharged to hospice in their home, she continued. Then, he began to do things that doctors thought he could not. …

Go here for the rest of the story.